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The association between positive-negative reactions of informal caregivers of people with dementia and health outcomes in eight European countries: a cross-sectional study

Author:
  • M. Carme Alvira
  • Ester Risco
  • Esther Cabrera
  • Marta Farre
  • Ingalill Rahm Hallberg
  • Michel H. C. Bleijlevens
  • Gabriele Meyer
  • Jaana Koskenniemi
  • Maria E. Soto
  • Adelaida Zabalegui
Publishing year: 2015
Language: English
Pages: 1417-1434
Publication/Series: Journal of Advanced Nursing
Volume: 71
Issue: 6
Document type: Journal article
Publisher: Wiley-Blackwell

Abstract english

AimTo describe the associations between positive and negative reactions of informal caregivers of people with dementia and health outcomes across eight European Countries. BackgroundCaring for someone with dementia may have implications for the caregiver's own health and for the care recipient. These consequences could be associated with caregivers' reactions to the process of care. DesignAssociation study based on cross-sectional data. MethodsParticipants were people with dementia and their informal caregivers living at home or in long-term care institutions. Data were collected between November 2010-April 2012 using the Caregiver Reaction Assessment (with dimensions of self-esteem, lack of family support, financial problems, disrupted schedule and health problems) and associations were sought with informal caregiver burden, quality of life and psychological well-being and with dementia sufferers' neuropsychiatric symptoms, comorbidity and dependency in activities of daily living using correlation coefficients. ResultsData from 2014 participants were used. Variability across countries was noted, as well as differences between care at home and in long-term care institutions. In general, self-esteem and lack of family support correlated with caregiver burden and psychological well-being. Associations were also found between disrupted schedule and caregiver burden, psychological well-being and quality of life. Health problems were clearly associated with caregiver burden, psychological well-being and quality of life. ConclusionStudy results support links between the reactions of informal caregivers of people with dementia and health outcomes. These may have implications in terms of how services are addressed.

Keywords

  • Nursing
  • caregiving
  • dementia
  • home care
  • informal caregiver
  • nursing home
  • positive and negative reactions

Other

Published
  • ISSN: 0309-2402
Ingalill Rahm Hallberg
E-mail: ingalill [dot] rahm_hallberg [at] med [dot] lu [dot] se

Professor emerita

Health-promoting Complex Interventions

HSC

65