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Third Åland islands conference on von Willebrand disease, 26-28 September 2012: meeting report.

  • Erik Berntorp
  • B Fuchs
  • M Makris
  • R Montgomery
  • V Flood
  • J S O'Donnell
  • A B Federici
  • D Lillicrap
  • Peter James
  • U Budde
  • M Morfini
  • Alexander Petrini
  • S Austin
  • C Kannicht
  • V Jiménez-Yuste
  • C Lee
Publishing year: 2013
Language: English
Pages: 1-18
Publication/Series: Haemophilia
Volume: 19 Suppl 3
Document type: Journal article
Publisher: Federation of European Neuroscience Societies and Blackwell Publishing Ltd

Abstract english

The first meeting of international specialists in the field of von Willebrand disease (VWD) was held in the Åland islands in 1998 where Erik von Willebrand had first observed a bleeding disorder in some members of a family from Föglö and a summary of the meeting was published in 1999. The second meeting was held in 2010 and a report of the meeting was published in 2012. Topics covered included progress in understanding of VWD over the last 50 years; multimers; classification of VWD; pharmacokinetics and laboratory assays; genetics; treating the paediatric patient; prophylaxis; geriatrics; gene therapy and treatment guidelines. This third meeting held over 3 days covered the structure and function of von Willebrand factor (VWF); type 1 VWD, the most common form of the disease; a lifespan of pharmacokinetics in VWD; detecting inhibitors in VWD patients; and special challenges in understanding and treating the female VWD patient.


  • Hematology


  • Clinical Coagulation, Malmö
  • Physiotherapy
  • ISSN: 1351-8216
Peter James
E-mail: peter [dot] james [at] immun [dot] lth [dot] se


Department of Immunotechnology

+46 46 222 14 96

+46 70 247 79 60