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Ingalill Rahm Hallberg

Ingalill Rahm Hallberg

Professor emerita

Ingalill Rahm Hallberg

Structure of long-term home and institutional care systems in Europe

Author

  • Ingalill Rahm Hallberg
  • Staffan Karlsson
  • Connie Lethin
  • Ulla Melin Emilsson

Summary, in English

The aim of this part of the RightTimePlaceCare study (WP2) was to describe and analyse the European health, social care and welfare systems, advocacy and informal caregiver support systems for patients with dementia. The description and analyses covers the continuum of care from diagnosis, informal care, contributions from civic society, public home care and the intermediate forms of care, to the long-term institutionalised care, and end of life care. In a first step, the terminology was developed and meanings of different terms used in relation to dementia care were collected, analysed, defined and categorised. Thereafter the terminology was used to develop a template organised on the Y-axis as being the course of the dementia disease as described by the OECD in 2004, and on the X-axis as being the type of care provided, organised in accordance with the process of the disease from dementia screening to end of life care. In addition each country was asked to provide an overall description of the care system they offered with regard to the national directives and financing of their dementia care system. The primary source of information was written reports from different sources. Official documents, epidemiological studies and descriptions of the care system, in particular dementia care system offered in their country. In addition interviews with responsible managers, providers or the equivalent in relevant care and service organisations, with persons in consumer/user organisations, with staff, professional employees and purchasers in a municipality or another representative for a civic administrative area were recommended.

Department/s

  • Department of Health Sciences
  • Older people's health and Person-Centred care
  • School of Social Work

Publishing year

2011

Language

English

Publication/Series

Right Time Place Care (RTPC)

Document type

Report

Publisher

European Commission

Topic

  • Health Sciences

Keywords

  • long-term formal professional home care
  • long-term institutional nursing care systems
  • inter-sectoral communication

Status

Submitted

Report number

D2.1

Research group

  • Older people's health and Person-Centred care