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What Makes Institutional Long-Term Care the Most Appropriate Setting for People With Dementia? Exploring the Influence of Client Characteristics, Decision-Maker Attributes, and Country in 8 European Nations

Author:
  • Sue Tucker
  • Christian Brand
  • Caroline Sutcliffe
  • David Challis
  • Kai Saks
  • Hilde Verbeek
  • Esther Cabrera
  • Staffan Karlsson
  • Helena Leino-Kilpi
  • Astrid Stephan
  • Maria E. Soto
  • Gabriele Meyer
  • Anna Renom-Guiteras
  • Dirk Sauerland
  • Ansgar Wübker
  • Patrick Bremer
  • Jan P H Hamers
  • Basema Afram
  • Hanneke C. Beerens
  • Michel H C Bleijlevens
  • Sandra M G Zwakhalen
  • Dirk Ruwaard
  • Ton Ambergen
  • Ingalill Rahm Hallberg
  • Ulla Melin Emilsson
  • Christina Bökberg
  • Connie Lethin
  • David Jolley
  • Ian Bowns
  • Brenda Roe
  • Alistair Burns
  • Jaana Koskenniemi
  • Riitta Suhonen
  • Matti Viitanen
  • Seija Arve
  • Minna Stolt
  • Maija Hupli
  • Ene Margit Tiit
  • Jelena Leibur
  • Katrin Raamat
  • Angelika Armolik
  • Adelaida Zabalegui
  • Ester Risco
  • Carme Alvira
  • Marta Farre
  • Susana Miguel
  • Maria Soto
  • Agathe Milhet
  • Sandrine Sourdet
  • Sophie Gillette
  • Bruno Vellas
  • Consortium RightTimePlaceCare Consortium
Publishing year: 2016-05-01
Language: English
Pages: 9-465
Publication/Series: Journal of the American Medical Directors Association
Volume: 17
Issue: 5
Document type: Journal article
Publisher: Elsevier

Abstract english

To explore the extent to which client characteristics, decision-maker attributes, and country influence judgments of institutional long-term care (ILTC) appropriateness for people with dementia. Design, setting, and participants: A total of 161 experts in dementia care from 8 European countries reviewed a series of 14 vignettes representing people with dementia on the cusp of ILTC admission and indicated the most appropriate setting in which to support each case in a simple discrete choice exercise: own home, very sheltered housing, residential home, or nursing home. At least 16 experts participated in each country (Estonia, Finland, France, Germany, the Netherlands, Spain, Sweden, and the United Kingdom). Measurements: Descriptive statistics were used to characterize the experts and their placement preferences. Logistic regression modeling was used to explore the extent to which the sociodemographic and clinical characteristics of people with dementia, and the profession, workplace, and country of decision-makers were associated with ILTC recommendation. Results: Client characteristics, decision-maker attributes, and country all seemed to play a part in influencing professionals' perceptions of the appropriateness of ILTC for people with dementia. Expert decision-makers were more likely to recommend ILTC for individuals who required help with mobility or had multiple care needs, and appeared to give more weight to carers' than clients' wishes. Community-based social workers were less likely than other professional groups to favor ILTC placement. Experts in Finland, Germany, and the United Kingdom were less likely to recommend ILTC than experts in France, the Netherlands, and Estonia; experts in Sweden and Spain took an intermediate position. Conclusion: This study provides new understanding of the factors that shape professionals' perceptions of ILTC appropriateness and highlights the need to construct multifaceted models of institutionalization when planning services for people with dementia. It also has several important clinical implications (including flagging interventions that could decrease the need for ILTC), and provides a basis for enhancing professionals' decision-making capabilities (including the greater involvement of clients themselves).

Keywords

  • Other Health Sciences
  • Geriatrics
  • Care home placement
  • Decision-making
  • Dementia
  • Institutionalization
  • Long-term care

Other

Published
  • Older people's health and Person-Centred care
  • ISSN: 1525-8610
Ingalill Rahm Hallberg
E-mail: ingalill.rahm_hallberg [at] med.lu.se

Professor emerita

Older people's health and Person-Centred care

HSC

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