The browser you are using is not supported by this website. All versions of Internet Explorer are no longer supported, either by us or Microsoft (read more here: https://www.microsoft.com/en-us/microsoft-365/windows/end-of-ie-support).

Please use a modern browser to fully experience our website, such as the newest versions of Edge, Chrome, Firefox or Safari etc.

Ingalill Rahm Hallberg

Ingalill Rahm Hallberg

Professor emerita

Ingalill Rahm Hallberg

Acute leukaemia or highly malignant lymphoma patients' quality of life over two years: a pilot study

Author

  • L Persson
  • G Larsson
  • O Ohlsson
  • Ingalill Rahm Hallberg

Summary, in English

The aim of this study was, first, to investigate the quality of life and sense of coherence for acute leukaemia and malignant lymphoma patients at the start of treatment and over 2 years. A second aim was to compare questionnaire responses with patients' statements in open-ended interviews. A consecutive sample of 16 patients responded to the Quality of Life Questionnaire (QLQ-C30), Lund Gerontological Centre questionnaire and the Sense of Coherence Scale at the start of treatment and after 12 and 24 months. The QLQ-C30 questionnaire was administered also after 4, 8, 16 and 20 months. Tape-recorded open-ended interviews were conducted every 4 months before the patients responded to the questionnaires. Quality of life (QoL) and sense of coherence were scored more highly at the beginning of treatment for patients who did not relapse, than for those who relapsed. This difference remained throughout the study period. There was no correspondence in responses between questionnaire and personal interviews, although the results from the interviews, in some aspects, validated the result from the QLQ-C30. Those patients who relapsed may have had different prerequisites or been in a worse position at the onset of the disease and, reasonably, they needed more compensatory nursing care. More knowledge about the correspondence between a person's perceived QoL when discussed in personal interviews compared with responses given in standardised QoL questionnaires is needed before any assumption about clinical relevance can be made.

Department/s

  • Department of Health Sciences

Publishing year

2001

Language

English

Pages

36-47

Publication/Series

European Journal of Cancer Care

Volume

10

Issue

1

Document type

Journal article

Publisher

John Wiley & Sons Inc.

Topic

  • Nursing

Keywords

  • quality of life
  • nursing care
  • acute leukaemia
  • malignant lymphoma
  • EORTC QLQ-C30
  • personal interviews

Status

Published

ISBN/ISSN/Other

  • ISSN: 1365-2354